PET Scan Results a little disappointing :( – FUNKY HAT / Getting my Christmas Cocktail yesterday “aka” Chemo
Yesterday was a loooooooooong day, just now finishing update for yesterday. First appointment at 9:30 am (labs), got there around 12:00 since first doctor appointment was at 1:30 pm…. Then left at 10:37 PM… Picked up angel tree items I had on hold on the way home….. Arrived home right at midnight finally!! I received my PET Scan results yesterday, included picture of my report below. My last scan we received positive results (first week of November) and the decision was made after our discussion that we would try doubling my chemo (same overall dosage) but I would not come every week. Yesterday was my first scan since trying this and many of my tumors SUV (activity level they use for monitoring my cancer) increased and in the report a new area of concern to watch was mentioned My last several scans reported stable but the SUV level was going down on a very slow decline and this was the first scan in a long time that went significantly the wrong way. We are giving it 2 more months until my next scan and if it does not improve then back to every week. The last 1-2 months of my life have been some of my most stressful months over the past year, so praying that stress played a role. Poor Amanda, our Executive Director communicates with me almost everyday due to foundation and we have been friends forever so she has to listen and deal with me, lol. What many people don’t realize, when I don’t blog I am not always doing to good. On top of my...
Rough Day at MD Anderson :(
Had an extremely rough day today. Losing my purse was just icing on the cake. The expression when it rains it pours not accurate, it should be when it rains it turns into hurricane!! Today was my PET scan “aka” starvation day. Had nothing to eat or drink after midnight so driving in with no coffee and starving for my 1:30 scan was already hard. Thinking driving when starving might be as bad as driving when sleepy or drinking , lol. After I got to MD, had to wait a long time because they were running behind. Had 3 IV misses and had to get a different person to come in and they got it on the 4th try. The vein was in a weird spot and hurt (inside elbow included pic). Finally finished around 5:30 and could barely walk I was so wiped out from not eating. Brought rolls to eat in the dressing room when I finished my scan so I could at least make it to get food. My blood sugar was 46 a few scans ago and almost blacked out when I was leaving so I bring something small to at least keep me from possibly fainting. I then made it to the Cafe (next to large cafeteria) for Starbucks…… Credit card machine was down, so dumped out change in my Purse and was $1.00 short for my coffee…… lady behind me actually bought my coffee. Dropped my lip gloss at counter of course , one of those days. Was crying at counter after lady bought my coffee , told her thank you several times....
Battle Wound from IV / Blood work, Labs and Scans
Battle wounds from 2 IV’s over the past week for the PET and CT scans and lab work yesterday:( The good news is for both IV’s they got it on the first try and no fainting episodes!!!!!!!! I got their names so I can ask for the ladies up at MD next time I have a scan, lol. Kind of like my blood draws, Jewels is my lab lady every Monday. Once I found her, since I am a fainter, I started requesting her every time. Before Jewels I was a disaster when it came time to draw blood, but since her I am no longer afraid. She has been drawing my blood for almost a year in June (since I started chemo) and has never missed. I am so thankful to have met her and she helped me get over my fear. However, in the event of her absence I have to ask for a senior tech Next post is chemo update and scan results. Sharing pictures of my tumor on the next post....
PET Scan Results, Update, Visited Jennifer at MD, Chemo
Haven’t blogged in a while, the last 2 months have been very challenging. I have noticed when I feel good I push myself to the point of exhaustion and then crash for days. The hardest thing I am trying to learn is to slow down and that I’m not superwoman anymore, lol. This is my most challenging struggle with cancer, since I hate laying in bed and sitting around and resting and not feeling productive. Hopefully, I can find a way to manage my energy better so I don’t have the down days where I can’t move at all. Next comes my PET scan results!! Last week was my off week from chemo, so the last 2-3 days I have felt like myself once again My PET scan was last Thursday and I received results yesterday before chemo. According to the scan my SUV went down on all tumors by a little and this was my first positive test result. The report stated “Mild Positive Response to Therapy”. After discussing this with my doctor we wanted to know what my long term goal is and if surgery is in my future. She said the goal is to get me to a baseline and if we can get there to try to switch me to less toxic therapies for long term. Surgery is nowhere in my future at this time, it is two dangerous and my disease is too advanced at this time for that to be an option. The ultimate goal is to get my disease under control where it’s not spreading, growing or active and then we hope...Donate Here
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